Bachmann-Strauss Centers of Excellence

 

Proper diagnosis, treatment and comprehensive care has long been missing for people with dystonia. The nation’s first Bachmann-Strauss Dystonia Center of Excellence was established in New York City to fill that gap and to bring together the best clinical care and coordinated support services.  Now three new Centers's of Excellence, this time for both dystonia and Parkinson's disease have been established all over the country.

 

The Bachmann-Strauss Center's of Excellence is "one-stop shop" at its best!  These multidisciplinary Centers of Excellence bring together a topnotch team of neurologists, including pediatric neurologists, surgeons, psychiatrists, genetic counselors and others, as needed, to confer about a patient’s diagnosis and to develop a comprehensive treatment plan. There is also a vital research component and a fellowship-training program to help encourage more doctors to specialize in dystonia and Parkinson's disease.

 

For more information on our Centers please call Cheryl Corwin at (212) 682-9900, or email her ccorwin@bsdpf.org.

 

The Bachmann-Strauss Dystonia Center of Excellence

Beth Israel Mount Sinai Medical Center Department of Neurology

Director - Susan Bressman, MD

Phillips Ambulatory Care Center

10 Union Square East, Suite 5K

New York, NY 10003

For appointments contact Joan Miravite, Nurse Practicioner, jmiravite@chpnet.org or (212) 844-6134

 

The Bachmann-Strauss Dystonia & Parkinson's Disease Center of Excellence

The University of Alabama at Birmingham

Director- David Standaert, MD, PhD

1719 6th Avenue

Circ 516

Birmingham, AL 35294

For appointments contact Jeffrey Brannan, Dystonia Navigator, jrbran11@uab.edu or (205) 996-2652

 

The Bachmann-Strauss Dystonia & Parkinson's Disease Center of Excellence

The University of California, San Francisco

Director- Jill Ostrem, MD

1635 Divisadero Street

Room 520

San Francisco, CA 94143

For appointments contact Yasmeen Gonzalez, Yasmeen.Gonzalez@ucsf.edu or (415) 353-2311

 

The Bachmann-Strauss Dystonia & Parkinson's Disease Center of Excellence

The University of Florida

Director- Michael Okun, MD

1149 South Newell Drive

Room L3-100

Gainesville, Fl 32611

For appointments contact Dr. Michael Okun, Director, okun@neurology.ufl.edu.

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Fellows Funded at The Dystonia Center of Excellence

 

The Bachmann-Strauss Dystonia & Parkinson Foundation helped fund two fellowships along with Beth Israel Parkinson's disease and Movement Disorders Research Center at Beth Israel Medical Center. Here are our current fellows and their project in their own words.

 

Dr. Rivka Sachdev - Following my graduation from Mount Sinai School of Medicine and internship in general internal medicine at SUNY Downstate Medical Center, I completed my neurology residency training at Tufts Medical Center. My interest in movement disorders developed when I spent time with outpatients. I joined the Center for Movement Disorders at Beth Israel Medical Center in 2008. I am honored to be the first Bachmann-Strauss Dystonia Center of Excellence dystonia fellow. I'm working to define the genetic etiologies of dystonia. My project focuses on a gene for ataxia-telangiectasia and delineating the role this plays in the development of early onset and adolescent onset dystonia.

 

Dr. Matthew Barrett - I began my fellowship at Beth Israel Medical Center after completing my neurology residency at the University of Virginia. My interest in neurology led to my research on neurodegenerative diseases and how mitochondrial dysfunction leads to neuronal cell death. During my residency, I found encounters with patients with movement disorders to be the most rewarding and pursued a fellowship in movement disorders. By understanding what causes this group of disorders, I hope to contribute to advances in the field that can be applied to patient care. During my fellowship, I will be investigating the association between Gaucher Disease mutations and Parkinson's Disease.