Patients Helping Patients

Often dystonia and Parkinson's Disease patients feel isolate and alone. The Foundation believes that a strong support network is critical for patients and their families. To connect others who have been touched by these movement disorders, simply browse the blogs below.

The Untold Stories of Dystonia (dystonia)

http://rebeccashark.wordpress.com

 

Amy P. Smith (torsian dystonia)

http://amypsmith.wordpress.com

 

Battery Powered Person (DBS)

http://patbrogan13.wordpress.com

 

Bekah the Ballerina (early-onset dystonia)

http://pittsburghdystonia.org/rebekah

 

Blissful Blog (dystonia)

http://ctrgroove.wordpress.com

 

Brand New Day (dystonia)

http://www.evolvingsoul11.com

 

Childhood Onset Dystonia (early-onset dystonia)

http://childhoodonsetdystonia.blogspot.com

 

Chronicles of a Dystonia Muse (early-onset generalized dystonia)

http://dystoniamuse.com/

 

Confessions of a Girl in Hiding

http://chantel.livejournal.com/

 

Dystonia & Functional Movement Disorder Sufferer’s Blog (multiple forms)

http://dystoniasufferer.wordpress.com/

 

Dystonia and Me (facial dystonia)

http://dystoniaandme.wordpress.com/

 

Dystonia Daughter (father has dystonia)

http://dystoniadaughter.blogspot.com

 

Dystonia Girl (dystonia)

http://dystoniagirlblog.wordpress.com

 

Dystonia. Living in the Eye of the Tiger

http://www.squidoo.com/dystonia-information

 

Dystonia Mama (dystonia)

http://mommyhasamovementdisoder.blogspot.com

 

Dystonia the Devil

http://dystonia-the-devil.blogspot.com

 

Dystonie Treff Online (hemi-dystonia)

http://www.dystonietreffonline.de/english-version.html

 

Feeling Twisty (generalized dystonia)

http://feelingtwisty.wordpress.com

 

Homens De Bem (writer's cramp)

http://divanicio.wordpress.com

 

In The Blink Of An Eye (blepharospasm)

http://blephie.wordpress.com/

 

La Dystonie (dystonia - translated in English and French)

http://dystonia.blog4ever.com/blog/articled-cat-371346-396920-english_version.html

 

Little Writings (dystonia)

http://zeiramasil540.wordpress.com

 

Living With Dystonia (cervical dystonia)

http://lifewithdystonia.blogspot.com/

 

Living with Dystonia (dystonia)

http://www.anitarhoadeshenslee.blogspot.com

 

Matt Lawrence (early-onset)

http://mattyblaw.wordpress.com/

 

Musician's Focal Dystonia (musician's dystonia)

http://musicians-focal-dystonia.com

 

Musings of a Bionic Distance Runner (dystonia)

http://bionicrunner.blogspot.com

 

My Life with a Movement Disorder (dystonia)

http://mylifewithamovementdisorder.wordpress.com

 

My Life with Dystonia (dystonia)

http://lisariley00.wordpress.com

 

My Life with Dystonia (dystonia)

http://mylifewithdystonia.wordpress.com

 

Of Storms and Peace (dystonia)

http://ofstormsandpeace.wordpress.com

 

Pretty Pink Wings (dystonia)

http://nattiegamble.wordpress.com

 

Quest of the Nocturnal Baker (generalized dystonia)

http://questofthenocturnalbaker.blogspot.com

 

Rainy Day Friend (dopa responsive dystonia)

http://www.rainydayfriend/blogspot.com

 

Run Carrie Run! (dystonia)

http://runcarrierun.org

 

Stronger than Dystonia (lingual dystonia)

http://strongerthandystonia.weebly.com

 

Studio Foxhaven (dystonia & Parkinson’s)

http://www.studiofoxhoven.com/

 

The Jolly Runner (generalized dystonia)

http://thejollyrunner.wordpress.com/

 

Walking Forward 

http://forwardistheway.wordpress.com

 

 

A Soft Voice In A Noisy World – Making the Best of A Life with Parkinson’s Disease

http://pdpatient.wordpress.com/

 

Aging and Parkinson’s and Me

http://www.parkinsonsand5htp.blogspot.com/

 

Kaitlyn Roland: A Yogini With A PhD And A Passion To Help People Live Well With Parkinson’s Disease 

http://kaitlynroland.wordpress.com/

 

Coffee With Pokie  (active)

http://justpokietoo.blogspot.com/

 

Defeat Parkinsons

http://defeatparkinsons.wordpress.com

 

Disability – a dialogue with Parkinson’s and other diseases 

http://dialoguewithdisability.blogspot.co.uk/

 

It Is What It Is! Zen and living with Parkinson’s Disease

http://tomspdblog.blogspot.com

 

LIM Yoga Blog

http://www.limyoga.com/wpblog/

 

Living Alone With Parkinson’s “Works4Me” (alternative approaches)

http://www.livingalonewithparkinsons.com/

 

Walking the UK in a Straight Line for Parkinson’s

http://longstraightwalk.wordpress.com/

 

My Life with Parkinson’s disease

http://www.mylifewithparkinsondisease.blogspot.com/

 

On & Off:  The Alaska Parkinson’s Rag

http://offandonakpdrag.blogspot.com/

 

Parkinson’s Humor

http://parkinsonshumor.blogspot.com/

 

Parkinson’s in Balance and The Perky Parkie

http://www.parkinsonsinbalance.net/

 

Parkinson’s Journey…you are not alone

http://parkinsonsjourney.com/

 

Positively Parkinson’s

http://positivelyparkinsons.blogspot.com/

 

Recently Diagnosed Blog

http://www.fyipd.org/recently-diagnosed-blog/

 

Shake, Rattle and Roll

http://katekelsall.typepad.com/my_weblog/

 

Shakin’ Not Stirred: Finding Perseverance Through Parkinson’s

http://shakin-not-stirred.blogspot.com

 

Shaky Paws Grampa

http://shakypawsgrampa.blogspot.com/

 

Studio Foxhaven  (dystonia & Parkinson’s)

http://www.studiofoxhoven.com/

 

The Long Straight Walk 

http://longstraightwalk.co.uk

 

The PD Gardener

http://thepdgardener.wordpress.com

 

Vow For Parkinson

http://vowforparkinson.wordpress.com

 

Walking My Path With Parkinson’s

http://marian-pathwalk.blogspot.com/