What We Do

 

Our Mission

The Bachmann-Strauss Dystonia & Parkinson Foundation was established in 1995 to find better treatments and cures for the movement disorders dystonia and Parkinson's disease and to provide medical and patient information.  Louis Bachmann (1916-2000) and Bonnie Strauss founded The Bachmann-Strauss Dystonia & Parkinson Foundation (BSDPF) in 1995 as a nonprofit 501(c)3. The Foundation was started to encourage new scientific research in the fields of dystonia and Parkinson's disease and to heighten awareness about the diseases. The Foundation is also the leading organization actively looking at the interface between dystonia and Parkinson’s disease. Early stages of scientific research are often the hardest to fund. Following a similar concept to that of a "venture capital" fund, seed money is funded through annual grants, which help to leverage new ideas and advances in the fields. To date, the Foundation has allocated over $17 million dollars to 235 grants in the U.S. and abroad.

 

Our Research

 

Primary research grants are designed to provide seed money for innovative ideas to some of the most promising scientific investigators in the field. These grants have helped to bring greater insight into the causes and cures for dystonia and Parkinson's Disease. Our initial funding given out to our grantees has leveraged an additional $110 million from NIH funding. 

Click here to see the Funding Leverage from NIH Grants.

Click here to read about the Foundation's 2011-2014 grants.

 

Patient and Medical Education

A range of information is available online and in print - has been developed specially to help people who are newly diagnosed or who are living with dystonia or Parkinson’s disease. In addition, an annual free symposium provides information to patients, families, and healthcare providers about the latest treatments and research. Each year, the Foundation organizes a Think Tank that brings together noted scientists and clinicians from around the world in a collaborative effort to escalate progress in finding better treatments and cures for dystonia.